Welcome to Mastokids.Org, where we are Raising Children and Raising Awareness! It is our goal to provide a place where parents and caregivers of children with mastocytosis can come to learn, find support, and discover a safe place for their children to interact with other Mastokids.
Introducing our newest perk for our members and our Mastokids....The Small Spot!
Mastokids.Org is a place where parents, caregivers and friends of children with Mastocytosis can come to learn more about the condition that affects their loved ones. One of the great perks of membership to Mastokids is our members email list. This email list is a great way for our members to ask questions, share answers and overall provide amazing support to other people in the same situations.
Mastokids Board of Directors is proud to present The Small Spot . The Small Spot is an email list we are now offering to our member’s children ages 6-16. It is a benefit of membership and open to children with mastocytosis and their siblings. It works exactly like our members email list does. This will put our children in contact with other children just like them and give them an opportunity to not feel alone in the world of mastocytosis. This list is not moderated but will be watched by Administrators.
Membership into Mastokids has many benefits and it can be yours for only $24 a year. If you are not currently a member of Mastokids, please consider joining our group. It will provide a wonderful source to you as the parent and caregiver, and if you have older children with Mastocytosis, we are hoping that The Small Spot email list will be just as valuable to them as well.
If you have any questions about membership or The Small Spot , please send your questions to listmom@mastokids.org!
Alone we are Rare. Together we are Strong!
Last year, Mastokids was proud to partner with NORD (National Organization of Rare Disorders) in their first annual Rare Disease Day in the United States. Doing our part in spreading awareness, Mastokids created a video highlighting pediatric Mastocytosis and the tremendous support that we provide to parents of children with pediatric Mastocytosis. We were very pleased with our video and wanted to showcase it again for all of you who may not have had the chance to see it last year. We are again partnering with NORD and are doing much to continue to spread awareness of pediatric Mastocytosis and all rare diseases in support of Rare Disease Day, Feb. 28, 2010. Thank you for your support and your participation! Visit www.rarediseaseday.org to find out more about ways you can help spread awareness of pediatric Mastocytosis!
Mastocytosis is a rare disease whose cause remains unknown. What we do know is that the disease is the result of an overabundance of mast cells that are found normally within every human being's body tissues. Mast cells contain chemicals that are released into our systems to perform their various duties. In mastocytosis, the excessive number of mast cells release more of these chemicals than the body requires. The symptoms of mastocytosis are caused by the excessive amounts of chemicals interacting with body tissue.
Pediatric mastocytosis can take several forms, varying from mild forms to more severe forms of the disease. Any form of the disease presents challenges to raising children, and educating others on how mastocytosis affects their lives. We hope our site answers questions that arise for everyone involved in the lives of children with mastocytosis.
Mastokids.Org is non-profit 501(c)3 tax exempt organization. All individuals who participate in this non-profit organization are volunteers. No salaries are paid to anyone involved. All funds raised through our non-profit organization are used directly for sponsoring pediatric mastocytosis awareness, research and and for maintaining the non-profit organization.
Mastokids.org relies on generous donations from people like you. If you would prefer to make a donation via check, please make the checks payable to Mastokids and send your donation to:P.O. BOX 253, Blue Point, NY, 11715
Help raise money for Mastokids whenevery you search or shop. Sign up at Igive and select Mastokids.org as your cause.
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The information contained herein is not intended or implied to be a substitute for professional medical advice. Mastokids.org suggests you seek the professional care of your child’s pediatrician, a dermatologist, or internist to determine if your child has mastocystosis and how to manage his/her symptoms.
