About Us

  • MastoKids is a dedicated non-profit organization that was established in 2002 by families with children who have been diagnosed with mastocytosis, along with others who are genuinely interested in supporting this important cause. Operated entirely by volunteers, MastoKids strives to raise awareness about pediatric mastocytosis while also promoting vital research on this medical condition. There is currently a limited understanding and insufficient research surrounding pediatric mastocytosis, and through our efforts, we hope to significantly improve that situation for affected families.

Our Mission

  • To support our children with mastocytosis and their families by providing an empowering environment that promotes awareness, education, and research into pediatric mastocytosis.

Our Goals

  • Support our children with unconditional acceptance and by creating an environment for self validation through opportunities for contact with other children with mastocytosis.

  • Support parents and caregivers by providing tools to advocate for their children in schools, with medical professionals, and with the general public.

  • Raise awareness of mastocytosis among caregivers, patients, educators, medical professionals, and the general public.

  • Drive research into pediatric mastocytosis.

  • Foster awareness of pediatric mastocytosis and support for children and families in the international community.

Our Core Values

  • Integrity: Mastokids.Org will always act with integrity, with a firm adherence to a positive, sincere and dignified approach in all of our interactions.

  • Honesty: Mastokids.Org will always participate in, and encourage an open, honest, and candid exchange of information.

  • Respect: Mastokids.Org promotes an environment that demonstrates respect for all opinions and conveys open-mindedness/acceptance of all members. It also demonstrates, and highly values, a sincere respect for your child's privacy.

  • Teamwork: Mastokids.Org is enhanced by a team approach; our membership is encouraged to actively engage in projects and decision making for the enhancement of our organization as a whole. We will work as a team, with every member having a voice.

  • Focus: Mastokids.Org will always be rooted in a focus on the needs of our children.

Our Bylaws